Saturday, 22 August 2009

CFS 22 August Another shift lower

Hello All,

Understanding the parameters that we all live within helps us all to live our routine lives. What happens when the parameters are severely controlled by outside measures? An unexpected car crash messes our bodies up or the lives of those crushed. Or a tidal wave comes along and the whole world looks at sunning on the beach differently.

Those are outside parameter changes. Then there are the internal changes. Getting a severe flu. Out for 2-3 weeks then recover and on you go. Having a cold without medicine and you are out for 10 days. Get a broken leg depending on how bad can slow you down for a week to several. having the Big C will change your life for years.

So will Chronic Fatigue. I am still in the first stages of having symptoms similar to CFS. I am still learning what I can or cannot do. And what is scary is that no matter at what level I know that I need to be very careful with my energy.....I still rate my ability to do, higher than what is realistic.

Last week, I was feeling stronger every day. I was getting up on time (07:15am). I was riding my bicycle trainer for 20 minutes very low gear fairly slowly every day. Then I upped it to starting the 5 Tibetans. I couldn't do all the 21 suggested iterations of each, but did what my body could do easily carefully, then a light stretch of the ham strings and meditation for an hour. Every day I felt better. I don't even know what was different on Sunday but on Monday I was very dizzy after the meditation. I cut back on all points on Tuesday to no avail. From Wednesday on, I have done nothing. Not even able to do the meditation. Now I know that I did too much too quickly. Hindsight etc.

Then on Friday I got many people to help me shift a washing machine. I did less than a 10 year old could have done to help (I know because I used to do this as a 10 year old) Friday evening I was very tired. Saturday morning I was exhausted. Saturday arvo I was having difficulty getting off the couch without falling back to the couch.

The other thing that I have noticed about this interesting lifestyle of CFS is that no matter how my energy increases like over the previous 4-5 weeks....each hit takes me lower than I was before. And that scares me. So, now, after nearly 5 weeks of growth, I am lower than I was 2 months ago.

I know of CFS people that cannot get out of bed without help. I do not want to go that low. That means that I need to look very carefully at what I do. what I think that I want to do and discount that by about a 1000%. Also, I know at some level that I don't actually have CFS. However, HOWEVER it may look and act like CFS. It really is a Spiritual transmutation of my body to a new level of being. Meanwhile, it looks like, acts like and Spirit tells me to treat it like CFS. OK.

I am doing the Ayurvedic herbal recommendations from a Ayurvedic Practitioner in Jarrahdale WA. They were working great over those 5 weeks. I believe strongly that they will continue to work wonders over time. My responsibility is to NOT DO ANYTHING THAT IS DETRIMENTAL TO MY CONSTITUTION AT ALL!!!!

That "at all" means doing less than I was doing at my weakest this week until I get back to a safe level of being again. I think that I am still OK with the 20 min bike ride. I started that 3 weeks ago and it has helped. I think that I can do that and no more for a very long time. I had just started going to 25 minutes in the same low gear. I need to be very very careful of increasing amounts and I need to find some verifiable way to determine when I can start again and when i can increase.

Another part of the recovery of course is eating and vitamins. I am on an oh so tight budget that it is amazing that I get by sometimes. I still have a few things to sell and am doing so. I managed to stay on budget for only a month before going over drastically. Thanks to the many friends that are helping me through these interesting times. I am getting by with a little help from my friends as I believe the Beatles had a say about.

Be well

peace

gene

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