Hello All,
Just flipping through my bookmarks and ended up over here.
another slow day in the life of Gene. Just not used to this way of living. Been a work too hard too long doer for well, too long, ha ha ha.
Living the life of ease and joy. Have a home, have a support payment that just might be enough, nothing to do, how can it get better than that. Wow, what a list I could make of that one.
I didn't and I doubt that anyone else does either when they think about ideas like, "wow if I had some income and a home and nothing to do like that would be just great." Unhuh, until it happens. Then I learned that with nothing to do there is little reason to get up in the morning. Or to go to bed at night. Or to shower, or shave or to do anything. It literally takes away the reason to live. What am I living for? Another breath? gotta be more to supported life than that.
I am working on creating some sort of structure of activities in my daily life. However, with little income and zero energy that is difficult. I am more in the moment living my life than ever. Especially for the energy that isn't around. I am very careful and wary of any hugs, handshakes, walking from point a to point b, the weather and the amount of energy keeping warm will take. Even conversation while I am standing can take a load of my ability to get home safely.
The other day I was grocery shopping. All of a sudden I knew I had to sit or else I was going to the floor. Luckily there was a stool that short people use to reach the top shelves. I sat on it for 30 minutes to stabilize my energy before moving on. it is a feeling similar to running out of glycogen when cycling or running. Nearly hitting the wall. Trouble is that even eating some quick energy bar still takes just a bit of energy to digest. And a bigger less "quick" meal can be really devastating.
If anyone reading this has had CFS or been a carer for someone and knows of a few tricks to help survive I would love to hear from you. I am learning a few. Like always travel anywhere every time with quick energy food. And to eat often. the Insulin system in me is considered to be OK. But, it still uses energy to create more energy as I mentioned.
Well, I pray that all of you are in good energy and may be well.
peace
gene
Saturday, 27 June 2009
Friday, 26 June 2009
CFS, more tired, Exhausted and a swollen eye
Hello all of you all,
Well, what a day. Lost two icons of celebrity status. Michael Jackson, and Farah Fawcett. May they be well where ever they are.
On to living life. Some of you know that I have had an interesting eye swelling problem since the morning of 31 May. By Tuesday with incredible pain I presented my body to the Emergency Dept here in Fremantle WA.
The eye itself proved to be very healthy. The swelling......well......no one knew for sure what was going on. They suggested pain medication and turned me loose. I was back on Thursday with even more pain and the eye fully swollen shut. Well, yesterday, 25 June, I returned to the Ophthalmologist at Fremantle Hospital. This was a different Doctor that the two previous times. He wanted an immediate Cat Scan which was accomplished within the hour. He then wanted me to return today, Friday to review the CT and be inspected by a senior Doctor.
Below is the CT explained by a professional Doctor.
Findings:
Internal fixation is demonstrated at the antero-inferior right orbital margin and further wire overlaying the right frontal bone superiorly at the site of previous internal fixation. A little post-surgical deformity persists to the antero-inferior right orbital margin. The right frontal sinus is opaque, large with sclerotic marginal remodeling, except at its antero-inferior aspect where it bulgesinto the superior aspect of the right eye. Here it abuts the globe and superior rectus. There is some sclerotic deformity to the superior nasal bone. A single focus of left anterior ethmoid air cell opacification is shown but the remaining paranasal sinuses are patent.
Now I am sure that everyone knows exactly what happened right?..... OK, the area in the inner side of my right eye there is a sinus. Basically all sinus have a way in and a way out for fluids. My way out apparently is blocked. What ever the pump is that was pushing in pushed hard enough to push previously broken bone bits (my face was crushed about 30 years ago) out of where they have been resting since the accident....on top of my eye. If anyone looks at my face, my right eye orbit area looks swollen. Also, if I hold my head level, the right eye is being depressed from above. Currently the eye is healthy. The doctors are not overly concerned at this time. Hoping that the swelling will go away. They were pushing for a repeat CT in 6 months. I got a strong push from my guides to request one at 3 months. That is where we left it for now. there will be a CT in 3 months.
************
On another note. I saw my hormone specialist doctor this week also. I have been very tired for the last 3-8 months. I was hoping for something not so right in the blood profile. However, my iron levels are OK, thyroid is OK, Liver is OK, Electrolytes are OK, B12 is OK, I am healthy. that means then that I have Chronic Fatigue.
There is stuff that I can do to help my body recover a bit faster like taking some super vitamins and supplements etc. Unfortunately, they are expensive and my finances are on a diet. A strict, severe diet, ha ha ha. So, for now, I have to monitor my activity very very carefully. There are days where I actually have a bit of energy and I am able to easily do shopping etc. There are other days that the same activity completely exhausts me.
I am budgeting carefully and I am taking some vitamins and supplements. One, Acai Berry has kept me from having any colds or flu for over a year now. At a tsp a day, it is good money well spent. The ones that I really need......well, I am putting in for a Lotto win or help from friends.
I have my bike on a trainer stand and am able to ride it for about 20 minutes 2-3 times per week. At least one of you receiving this email I know has had CFS and recovered to race very well again. Any suggestions that worked for any of you that have had CFS I would appreciate hearing.
On a Spiritual Note.....I accept that I created this situation to learn many lessons from it. Now I have it. I am learning. And I will get beyond it and be healthy again to one day ride all the way around Australia on a bicycle.
Thank you all for putting up with my letters. I would love to hear from any and all of you please.
Also, if anyone here in Australia has a way to purchase vitamins and/or supplements at cost and would be willing to allow me to purchase through them I would appreciate it.
peace
gene
may you be well and happy
Well, what a day. Lost two icons of celebrity status. Michael Jackson, and Farah Fawcett. May they be well where ever they are.
On to living life. Some of you know that I have had an interesting eye swelling problem since the morning of 31 May. By Tuesday with incredible pain I presented my body to the Emergency Dept here in Fremantle WA.
The eye itself proved to be very healthy. The swelling......well......no one knew for sure what was going on. They suggested pain medication and turned me loose. I was back on Thursday with even more pain and the eye fully swollen shut. Well, yesterday, 25 June, I returned to the Ophthalmologist at Fremantle Hospital. This was a different Doctor that the two previous times. He wanted an immediate Cat Scan which was accomplished within the hour. He then wanted me to return today, Friday to review the CT and be inspected by a senior Doctor.
Below is the CT explained by a professional Doctor.
Findings:
Internal fixation is demonstrated at the antero-inferior right orbital margin and further wire overlaying the right frontal bone superiorly at the site of previous internal fixation. A little post-surgical deformity persists to the antero-inferior right orbital margin. The right frontal sinus is opaque, large with sclerotic marginal remodeling, except at its antero-inferior aspect where it bulgesinto the superior aspect of the right eye. Here it abuts the globe and superior rectus. There is some sclerotic deformity to the superior nasal bone. A single focus of left anterior ethmoid air cell opacification is shown but the remaining paranasal sinuses are patent.
Now I am sure that everyone knows exactly what happened right?..... OK, the area in the inner side of my right eye there is a sinus. Basically all sinus have a way in and a way out for fluids. My way out apparently is blocked. What ever the pump is that was pushing in pushed hard enough to push previously broken bone bits (my face was crushed about 30 years ago) out of where they have been resting since the accident....on top of my eye. If anyone looks at my face, my right eye orbit area looks swollen. Also, if I hold my head level, the right eye is being depressed from above. Currently the eye is healthy. The doctors are not overly concerned at this time. Hoping that the swelling will go away. They were pushing for a repeat CT in 6 months. I got a strong push from my guides to request one at 3 months. That is where we left it for now. there will be a CT in 3 months.
************
On another note. I saw my hormone specialist doctor this week also. I have been very tired for the last 3-8 months. I was hoping for something not so right in the blood profile. However, my iron levels are OK, thyroid is OK, Liver is OK, Electrolytes are OK, B12 is OK, I am healthy. that means then that I have Chronic Fatigue.
There is stuff that I can do to help my body recover a bit faster like taking some super vitamins and supplements etc. Unfortunately, they are expensive and my finances are on a diet. A strict, severe diet, ha ha ha. So, for now, I have to monitor my activity very very carefully. There are days where I actually have a bit of energy and I am able to easily do shopping etc. There are other days that the same activity completely exhausts me.
I am budgeting carefully and I am taking some vitamins and supplements. One, Acai Berry has kept me from having any colds or flu for over a year now. At a tsp a day, it is good money well spent. The ones that I really need......well, I am putting in for a Lotto win or help from friends.
I have my bike on a trainer stand and am able to ride it for about 20 minutes 2-3 times per week. At least one of you receiving this email I know has had CFS and recovered to race very well again. Any suggestions that worked for any of you that have had CFS I would appreciate hearing.
On a Spiritual Note.....I accept that I created this situation to learn many lessons from it. Now I have it. I am learning. And I will get beyond it and be healthy again to one day ride all the way around Australia on a bicycle.
Thank you all for putting up with my letters. I would love to hear from any and all of you please.
Also, if anyone here in Australia has a way to purchase vitamins and/or supplements at cost and would be willing to allow me to purchase through them I would appreciate it.
peace
gene
may you be well and happy
Monday, 22 June 2009
CFS, Exhausted, wasted, pooped
Hello All,
Have not written over here in a very long time. I will not say that I have not been depressed. I won't say that I have been either. let's just say that it comes and it goes and I get confidence that it will continue to do so because it always does, ha ha ha.
Had a Trip to Cervantes with friends. It was great. Had a swollen shut eye during the time and still do have.
This past weekend including Friday I have been so exhausted that the closest that I can give you and idea of would be the feeling that you have the first day after a major round of the Flu where you get up and go for a walk of a 100 meters and realize that you are getting better but you are also still exhausted. It has been difficult to lift my arms at times. I continue to move a bit just to keep the juices flowing, however, there just isn't much energy around.
Have gotten my blood work back. Iron is up by a point. Didn't get the B12 checked but have been doing self injectable B12 for a month so I am sure that it is up. Salt is up as is the Blood pressure. Still pooped.
Have a doctor apt soon. Hope that we can learn something of value and that I can afford what it takes to help
Keep you all posted.
You are always welcome to email me.
peace
gene
Have not written over here in a very long time. I will not say that I have not been depressed. I won't say that I have been either. let's just say that it comes and it goes and I get confidence that it will continue to do so because it always does, ha ha ha.
Had a Trip to Cervantes with friends. It was great. Had a swollen shut eye during the time and still do have.
This past weekend including Friday I have been so exhausted that the closest that I can give you and idea of would be the feeling that you have the first day after a major round of the Flu where you get up and go for a walk of a 100 meters and realize that you are getting better but you are also still exhausted. It has been difficult to lift my arms at times. I continue to move a bit just to keep the juices flowing, however, there just isn't much energy around.
Have gotten my blood work back. Iron is up by a point. Didn't get the B12 checked but have been doing self injectable B12 for a month so I am sure that it is up. Salt is up as is the Blood pressure. Still pooped.
Have a doctor apt soon. Hope that we can learn something of value and that I can afford what it takes to help
Keep you all posted.
You are always welcome to email me.
peace
gene
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