Hello All,
Understanding the parameters that we all live within helps us all to live our routine lives. What happens when the parameters are severely controlled by outside measures? An unexpected car crash messes our bodies up or the lives of those crushed. Or a tidal wave comes along and the whole world looks at sunning on the beach differently.
Those are outside parameter changes. Then there are the internal changes. Getting a severe flu. Out for 2-3 weeks then recover and on you go. Having a cold without medicine and you are out for 10 days. Get a broken leg depending on how bad can slow you down for a week to several. having the Big C will change your life for years.
So will Chronic Fatigue. I am still in the first stages of having symptoms similar to CFS. I am still learning what I can or cannot do. And what is scary is that no matter at what level I know that I need to be very careful with my energy.....I still rate my ability to do, higher than what is realistic.
Last week, I was feeling stronger every day. I was getting up on time (07:15am). I was riding my bicycle trainer for 20 minutes very low gear fairly slowly every day. Then I upped it to starting the 5 Tibetans. I couldn't do all the 21 suggested iterations of each, but did what my body could do easily carefully, then a light stretch of the ham strings and meditation for an hour. Every day I felt better. I don't even know what was different on Sunday but on Monday I was very dizzy after the meditation. I cut back on all points on Tuesday to no avail. From Wednesday on, I have done nothing. Not even able to do the meditation. Now I know that I did too much too quickly. Hindsight etc.
Then on Friday I got many people to help me shift a washing machine. I did less than a 10 year old could have done to help (I know because I used to do this as a 10 year old) Friday evening I was very tired. Saturday morning I was exhausted. Saturday arvo I was having difficulty getting off the couch without falling back to the couch.
The other thing that I have noticed about this interesting lifestyle of CFS is that no matter how my energy increases like over the previous 4-5 weeks....each hit takes me lower than I was before. And that scares me. So, now, after nearly 5 weeks of growth, I am lower than I was 2 months ago.
I know of CFS people that cannot get out of bed without help. I do not want to go that low. That means that I need to look very carefully at what I do. what I think that I want to do and discount that by about a 1000%. Also, I know at some level that I don't actually have CFS. However, HOWEVER it may look and act like CFS. It really is a Spiritual transmutation of my body to a new level of being. Meanwhile, it looks like, acts like and Spirit tells me to treat it like CFS. OK.
I am doing the Ayurvedic herbal recommendations from a Ayurvedic Practitioner in Jarrahdale WA. They were working great over those 5 weeks. I believe strongly that they will continue to work wonders over time. My responsibility is to NOT DO ANYTHING THAT IS DETRIMENTAL TO MY CONSTITUTION AT ALL!!!!
That "at all" means doing less than I was doing at my weakest this week until I get back to a safe level of being again. I think that I am still OK with the 20 min bike ride. I started that 3 weeks ago and it has helped. I think that I can do that and no more for a very long time. I had just started going to 25 minutes in the same low gear. I need to be very very careful of increasing amounts and I need to find some verifiable way to determine when I can start again and when i can increase.
Another part of the recovery of course is eating and vitamins. I am on an oh so tight budget that it is amazing that I get by sometimes. I still have a few things to sell and am doing so. I managed to stay on budget for only a month before going over drastically. Thanks to the many friends that are helping me through these interesting times. I am getting by with a little help from my friends as I believe the Beatles had a say about.
Be well
peace
gene
Saturday, 22 August 2009
Sunday, 16 August 2009
CFS 16 Aug 09
Been a long time since I have been writing here or anywhere. Been keeping notes at the food diary lightly though.
I have been doing ayurvedic medicine for just over 3 weeks now and the results are good as far as I can tell. My stool has improved to a more or less normal state of being. One poo a day and that feels fine.
At 10 days I had a presence of feeling ‘good’ about me again. It was more a mental/spiritual awareness than anything else. Physically I would say that I have been rather stabile for the 3 weeks. I have had a couple of hits to less than zero, but I would return to the stabile feeling fairly quickly. Though all three are worth mentioning. Being Vata I am to eat warm small meals. I ate a warm LARGE greasy, floury meal with friends. 20 minutes later I needed to sit on the sidewalk to keep from hitting the ground. That arvo was some scary driving to say the least as all mental function went awry. I got so turned around trying to find a place that I had to pull out the street directory 3 times in 2 blocks to sort out North/south, East/West. I had a short rest at the grocery where I was headed (Asian) and the one across the street (Indian). The drive home was cautious but safe.
The other two times were eating cold meals even though they were organic I got very weak very rapidly.
Even here at home I often eat too much at one time and get quite weak from that. I need to break down what I am eating into sooner and later rather than all at once.
Last week, I started to get the sense that I need to observe how I have acquired this wonderful home that I am living in and the income and the CFS and many other things. And to then start to apply that sequencing to acquire what is coming in my future. And to observe what I am saying to not create a poorer me in the future. I have noticed some statements that are not good and need to find alternatives to say the same thing in a positive way.
Friday’s Astrology was in tune with my current thoughts:
Though you are feeling that life is presently a pleasant affair, under the surface there is the slight sense that you are in the waiting room, rather than in the adventure itself. Here is where you need the patience to feel out your needs. Don't be indolent in the gap.
Dictionary of indolent: –adjective
1. having or showing a disposition to avoid exertion; slothful: an indolent person.
2. Pathology. causing little or no pain; inactive or relatively benign: an indolent ulcer that is not painful and is slow to heal.
In that sense I am striving now as I write this to get in contact with Spirit to learn what next. Also, friend Shane is coming over on Monday and I am going to ask his help in this too. I may be less than patient in this, but I feel that it is time to stir a bit from the couch of life. I will continue to be very cautious with my energy as it does disappear rapidly at times yet and I know this.
Be well
Peace
gene
I have been doing ayurvedic medicine for just over 3 weeks now and the results are good as far as I can tell. My stool has improved to a more or less normal state of being. One poo a day and that feels fine.
At 10 days I had a presence of feeling ‘good’ about me again. It was more a mental/spiritual awareness than anything else. Physically I would say that I have been rather stabile for the 3 weeks. I have had a couple of hits to less than zero, but I would return to the stabile feeling fairly quickly. Though all three are worth mentioning. Being Vata I am to eat warm small meals. I ate a warm LARGE greasy, floury meal with friends. 20 minutes later I needed to sit on the sidewalk to keep from hitting the ground. That arvo was some scary driving to say the least as all mental function went awry. I got so turned around trying to find a place that I had to pull out the street directory 3 times in 2 blocks to sort out North/south, East/West. I had a short rest at the grocery where I was headed (Asian) and the one across the street (Indian). The drive home was cautious but safe.
The other two times were eating cold meals even though they were organic I got very weak very rapidly.
Even here at home I often eat too much at one time and get quite weak from that. I need to break down what I am eating into sooner and later rather than all at once.
Last week, I started to get the sense that I need to observe how I have acquired this wonderful home that I am living in and the income and the CFS and many other things. And to then start to apply that sequencing to acquire what is coming in my future. And to observe what I am saying to not create a poorer me in the future. I have noticed some statements that are not good and need to find alternatives to say the same thing in a positive way.
Friday’s Astrology was in tune with my current thoughts:
Though you are feeling that life is presently a pleasant affair, under the surface there is the slight sense that you are in the waiting room, rather than in the adventure itself. Here is where you need the patience to feel out your needs. Don't be indolent in the gap.
Dictionary of indolent: –adjective
1. having or showing a disposition to avoid exertion; slothful: an indolent person.
2. Pathology. causing little or no pain; inactive or relatively benign: an indolent ulcer that is not painful and is slow to heal.
In that sense I am striving now as I write this to get in contact with Spirit to learn what next. Also, friend Shane is coming over on Monday and I am going to ask his help in this too. I may be less than patient in this, but I feel that it is time to stir a bit from the couch of life. I will continue to be very cautious with my energy as it does disappear rapidly at times yet and I know this.
Be well
Peace
gene
Tuesday, 4 August 2009
CFS 4 Aug 09 diet exhaustion
Hello All,
A new surprise for me today. I have felt really good for two days. Started on Sunday arvo. Just all of a sudden I really felt good for the first time in a long time. I know to not trust these feelings but to enjoy them while they last.
Today I went to a friend's to get my taxes done. Just after we went out to eat, their treat. It was a buffet of Asian dishes. I had a bit more than I probably ought to have as I was hungry. Great conversation, good food, good time. After we walked to an Asian bakery and bought some small cakes to take with us. Next to an Asian grocery where my friends buy personal supplies. There I started to get weak.
I immediately knew what had happened. I had eaten too big of a meal and all the blood of my body was rushing to my gut. I got dizzy enough that I excused myself and went out to sit on the sidewalk rather than falling in the store. My friend has had CFS for over 20 years and has successfully accomplished the rigors of bicycling to become one of Australia's World Champions in the Master division. She understands the condition and understands the immediacy of needing to sit quickly.
I was quite foggy, though still conversational as we walked to the car. When we got home, I nibbled a bit of the cake then needed to leave as I still needed to drive into the city to buy some needed ingredients for my larder. Just as I was leaving I received a phone call from a friend that I hoped to meet up with in the city. She was talking so fast that it was just a blur and then I realized just how tired I was. I had to ask her to slow down as I could not understand her at all. I felt much like I have heard people with a stroke that think they are talking coherently while talking mumbles. I knew where I was. I knew where I needed to go but not how to get there. And with my friend's rapid conversation I was so disoriented that I pulled over and stopped the car. Even though I have driven into the area that I was going to before, I couldn't coordinate my brain to recognize the directions from my friend over the phone. We agreed to meet near the grocery that I was going to.
Later I got a message saying that she had decided to go home as she was tired also. Enroute, I missed my turn and drove 10-15 kilometers around the area trying to understand the map, the direction I was going, where I was. I arrived, bought my stuff and headed home. Also, I arrived safely.
I actually got better as time went on as the food digested from my stomach.
Lesson learned. When eating out with CFS, do not let the eyes do the talking of how much to eat. This life is such a careful balance of all nuances of every breathe all the time. How I mix with friends, what I think, what I say, how I feel everything.
Friends, I sit in amazement of the levels of exhaustion that can be visited by a human. I am healthy, I take my vitamins, my blood is good, blood sugar levels are good, all is well......except that I am running way below the empty line of energy in too many situations. I have thought about writing a book to describe to healthy people of exhaustion. As I sit here now at my computer I am relatively fine. And, I sit here in near disbelief of how I felt earlier today. And though I have attempted a few times to describe to my friends just how low I am feeling, I know that they cannot comprehend it. And, my energy is GREAT to most people with CFS. How they cope, they that cannot even get out of bed is beyond me. I am so blessed to be so healthy as I am even now.
My Cyclist friend is a story in herself. She was diagnosed with CFS and Fibro Myalgia at the age or around 45. Her old time doctor told her as told to me, "Dear, you can go home an lay on your couch the rest of your life or get on a bicycle and start riding." She started to ride. She has told me how some nights to ride 100 meters up the road and back was agony. 15 years later, she just won the World Jersey in 5 different events. Her TV wall is covered with racks to hold all the medals and trophies that she has won. In a picture case resides the jersey.
Now, though she says that she is tired and doesn't desire to ride so much. The last ride she did with the men they had a 30k average for the day. That is better than my friend and I ever did in all the days of our riding. She is still WOW to me.
Best wishes to all of you that read this. Love to hear from you sometime.
bodyshine@iinet.net.au
If you are healthy and reading this..... I urge you to not over do anything any time in your life. Keep up the vitamins always. Eat really well. that is not eating LOTS but eating good food properly cooked to get the most nutrients.
If you have CFS and are reading this.... write to me. I am on a program that seems to be helping. I have not got it all worked out yet, but I feel better than I did a month ago.
peace
gene
A new surprise for me today. I have felt really good for two days. Started on Sunday arvo. Just all of a sudden I really felt good for the first time in a long time. I know to not trust these feelings but to enjoy them while they last.
Today I went to a friend's to get my taxes done. Just after we went out to eat, their treat. It was a buffet of Asian dishes. I had a bit more than I probably ought to have as I was hungry. Great conversation, good food, good time. After we walked to an Asian bakery and bought some small cakes to take with us. Next to an Asian grocery where my friends buy personal supplies. There I started to get weak.
I immediately knew what had happened. I had eaten too big of a meal and all the blood of my body was rushing to my gut. I got dizzy enough that I excused myself and went out to sit on the sidewalk rather than falling in the store. My friend has had CFS for over 20 years and has successfully accomplished the rigors of bicycling to become one of Australia's World Champions in the Master division. She understands the condition and understands the immediacy of needing to sit quickly.
I was quite foggy, though still conversational as we walked to the car. When we got home, I nibbled a bit of the cake then needed to leave as I still needed to drive into the city to buy some needed ingredients for my larder. Just as I was leaving I received a phone call from a friend that I hoped to meet up with in the city. She was talking so fast that it was just a blur and then I realized just how tired I was. I had to ask her to slow down as I could not understand her at all. I felt much like I have heard people with a stroke that think they are talking coherently while talking mumbles. I knew where I was. I knew where I needed to go but not how to get there. And with my friend's rapid conversation I was so disoriented that I pulled over and stopped the car. Even though I have driven into the area that I was going to before, I couldn't coordinate my brain to recognize the directions from my friend over the phone. We agreed to meet near the grocery that I was going to.
Later I got a message saying that she had decided to go home as she was tired also. Enroute, I missed my turn and drove 10-15 kilometers around the area trying to understand the map, the direction I was going, where I was. I arrived, bought my stuff and headed home. Also, I arrived safely.
I actually got better as time went on as the food digested from my stomach.
Lesson learned. When eating out with CFS, do not let the eyes do the talking of how much to eat. This life is such a careful balance of all nuances of every breathe all the time. How I mix with friends, what I think, what I say, how I feel everything.
Friends, I sit in amazement of the levels of exhaustion that can be visited by a human. I am healthy, I take my vitamins, my blood is good, blood sugar levels are good, all is well......except that I am running way below the empty line of energy in too many situations. I have thought about writing a book to describe to healthy people of exhaustion. As I sit here now at my computer I am relatively fine. And, I sit here in near disbelief of how I felt earlier today. And though I have attempted a few times to describe to my friends just how low I am feeling, I know that they cannot comprehend it. And, my energy is GREAT to most people with CFS. How they cope, they that cannot even get out of bed is beyond me. I am so blessed to be so healthy as I am even now.
My Cyclist friend is a story in herself. She was diagnosed with CFS and Fibro Myalgia at the age or around 45. Her old time doctor told her as told to me, "Dear, you can go home an lay on your couch the rest of your life or get on a bicycle and start riding." She started to ride. She has told me how some nights to ride 100 meters up the road and back was agony. 15 years later, she just won the World Jersey in 5 different events. Her TV wall is covered with racks to hold all the medals and trophies that she has won. In a picture case resides the jersey.
Now, though she says that she is tired and doesn't desire to ride so much. The last ride she did with the men they had a 30k average for the day. That is better than my friend and I ever did in all the days of our riding. She is still WOW to me.
Best wishes to all of you that read this. Love to hear from you sometime.
bodyshine@iinet.net.au
If you are healthy and reading this..... I urge you to not over do anything any time in your life. Keep up the vitamins always. Eat really well. that is not eating LOTS but eating good food properly cooked to get the most nutrients.
If you have CFS and are reading this.... write to me. I am on a program that seems to be helping. I have not got it all worked out yet, but I feel better than I did a month ago.
peace
gene
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